Thursday, June 30, 2011

Uncharted Territory

The doctor came in today and asked what we've done in the past when Skylar has had a fever and how she reacted. I told her we never have had a fever last more than a day and this was all new to me. She was surprised - obviously a good thing - and decided to start some antibiotics to try and attack whatever is lurking in her body.

We've run a couple of tests for different things and everything has come back negative, which I guess is a good thing, but we obviously know there is still a problem and can't find it... that's frustrating. I hate watching my little girl uncomfortable, in pain, not feeling well and standing by watching helplessly. I wish I could fix it and make it all better so she didn't have to suffer.

I'm so thankful for the staff at the TICU (Technology-ICU) here because they let me be involved as much or as little as I want. I have been doing a lot of the respiratory treatments and helping with a few other things, but it's so nice to have a staff who respects us as parents and caregivers even though we don't have a degree in nursing or a specialty practice.

Kyle came up last night to bring me dinner and bring a lot of Skylar's favorite movies from home since we're going to be staying here longer. I am so thankful we live close to the hospital and Kyle can come hang out when he's not working. Also, family and several friends have come by to bring me meals and other fun goodies - so amazing! We're so blessed.

So for now, we're preparing to camp out at the hospital throughout the weekend and see what Skylar does. We've switched her feeds back to the stuff we were on at home since it's not good to implement changes during an illness. We'll hopefully get this fever under control and see if we can bust out of here!

Hope you have a great weekend!

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